Well, today Ben saw the neurologist and based on what he told me, he got good and bad news. He recorded the conversation with the doctor so that I can hear word for word what it says. He has optical neuritis (http://www.mayoclinic.com/health/optic-neuritis/DS00882) and sporadic tingling in his hands. He has lesions in his brain that are "not active". The doctor told him he could have something called CSI?. A CSI diagnosis would mean that he will develop full blown MS in ten years or so. That is the bad news. He will not have another MRI on his neck (Friday the 21st) and had more blood work today. If those tests come back normal he will then have a spinal tap.
http://www.nationalmssociety.org/index.aspx ( A really good resource.)
Tests tests tests. Someday and someway....we will get to the bottom of this. Keep praying.
On a side note....I looked at Ben taking care of his health issues so I decided to do the same and go for my follow up colposcopy for my cervical cell changes(September 27th). Here's to hoping it has not developed into cervical cancer. And if it has .........well.......I have Ben by my side to help me deal with it.
Hi Nik,
ReplyDeleteMy heart goes out to you and Ben during this time of unforeseen straits. I recently had lunch with a friend from highschool and each of our goals was to contact someone who was one of our best friends at that time, whom we lost track of. It really pains me to read this as I finally found a link to Ben. If you'd consider it, please pass along my email to him. I'm moving to Philadelphia in three weeks and I'd do about anything to catch up with the guy.
joeldohm at aol dot com